Yesterday's appointments went very well. First before we had to see the doctors we got a little school shopping done. Annika has her backpack for school now and there are some of her supplies in the bag. She is so excited. Tonight I will try to get her to sit down and write her name on all of it and then we can put the bag in my closet until school starts. Otherwise she will be using all her supplies now!! She already had to "test" her box of crayons out in the car!!!
First doctor appointment was with the neurologist. He was glad that she has done well on the current combination of medications that we have her on now. No side effects which is a good thing. And I told him that the sleep issue resolved with the Keppra also so we no longer give her the melatonin before bed. I can't say whether this was helping the problem or no so for now we will just leave it alone. I told him I was disappointed that his current prescription did work (only in this way, it is great to have an answer) because I never got to tell him that he didn't know what he was doing. We were joking around at her last appointment and he always says that there is no true science to this so if it doesn't work or if it makes it worse I had every right to call him and tell him that he doesn't know what he is doing. He just laughed at me. Of course we did both say that we are glad that it seems to be working out well.
Then it was off to our next appointment. We had to drive through Wendy's on our way by in order to get something to eat. Annika was excited because she got a computer game in her kid's meal. I am sure we are going to have to try this game out some time soon.
The next appointment was with the rehab physician. He did agree that we should try to do the serial casting before doing the Botox. This way we can either prolong the time between injections and very possibly not have to do the injections at all. We are thinking that she would get about the same results either way and there were times that she would get the injection first and then still have to do the serial casting. So Annika has a blue cast on her left leg. She gets to pick out the color of her cast. Ryan wanted her to get an orange cast so we could put red racing stripes on it but she told him that she would do that next time. So if she has to get another cast put on next week it will be orange. Ryan will be in charge of putting the red flames on it because I am not the artist.
It is not the best time to have a cast on because it is now going to be the warmest we have had it all summer the next week or so. Also it is Cokato Corn Carnival next week and of course that means she gets to go on rides. Well, she will go cast and all if I know her. It took her a little bit of time yesterday to get used to walking with that cast again. But she got lots of practice because we spent the evening at the park in Cokato as that is where Youth Group was. So we packaged up her cast as best we could and let her play. She is supposed to avoid playgrounds because the wood chips or rocks can get under the cast and cause irritation. She wore out pretty quickly on the equipment and then sat on the swing or watched the big kids play volleyball. It was such a great night to be outside that I couldn't make her stay in. Now just to keep her out of the lake!!!
Thursday, August 6, 2009
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2 comments:
You are such a good mom. My nephew Ryan also has CP. He was born at 26 weeks (1 pound, 14 ounces), so he has some other issues as well - he's in a wheelchair. He's 3 years old and doesn't walk yet. I know my brother and sister in law could learn a lot from you. If you would ever have some time, I'm sure they would love to talk with you. Can you e-mail me if you're interested: annamusatov@hotmail.com
Thanks but some days you just gotta wonder!!
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